Friday, September 20, 2013

She knows!

Look at that sweet smile...the smile of a precious little girl who has waited so long for a family of her own.  Now our sweet Ava knows she doesn't have to wait anymore!!!   We got updated pictures and the nannies let us know that they told Ava she has a family.  She knows!!!!  Praising God for leading us to our youngest and refusing to let us walk away from her. 

 How adorable is she??  

 Another genius :)  On the video she wrote two rows of girl!!

Please keep praying with us that Ava stays strong and healthy until we can get her home.  Pray everything continues to go smoothly and quickly.  Also, remember our family as we fund raise for Ava's adoption.  God's provisions have amazed us so far,but we have a long way to go.  It will all be worth it to get Ava home!!

Sunday, September 15, 2013

Ava Update

Ava's care package has been ordered.  Hopefully, she'll be getting a photo album and letter from us very soon.  She'll know that she has a family!!  We should also get new pictures of our girl!!!  We are getting so excited. 

It is overwhelming how God is providing for this adoption.  We didn't just take a step of faith, we jumped off a cliff...fully expecting God to catch us.  He is, He really is!  We still have a long way to go to fully fund Ava's adoption, but God is reminding us daily that He WILL bring Ava home.

Love you, sweet Ava...can't wait to see this sweet smile in person and hold you in my arms!!!

Help us get Miss Ava home!! For every $5 donation made to our AdoptTogether site, you will be entered to win a 7 night stay in a beach front Gulf Shores, AL condo sponsored by  Don't miss out! 

Nothing is impossible with God!  Luke 1:37

Monday, September 9, 2013


Ava Frances

This sweet little face will make us BamFam6!!!

We found out today that we have Pre-Approval (PA) which means Ava is officially matched with us in China.  We can post her pictures and most importantly, let her know that she has a family!!!!

Ava Frances is already a special little girl.  She shares the name Frances with one of the most influential women in my Granny.  For the past 8 months, my Granny has lived in Heaven.  There isn't a day that goes by that I don't think about my Granny and miss her so much.  I am so glad that Ava will have her name!  

(Password is frannie16)

 Whoever welcomes a little child like this in my name welcomes me.
Matthew 18:5

Saturday, September 7, 2013

HOPE with Every Step

 We are so excited to announce a huge fundraiser in our battle with Muscular Dystrophy!!

This is the second annual 5k/Fun Run sponsored by Renew Physical Therapy.  Lily's battle with Merosin Deficient Congenital Muscular Dystrophy is a daily struggle.  She amazes us with her constant joy and determination!!  Ava, who is waiting in China to join our family, also has Muscular Dystrophy.  We are prepared to continue our fight with MD with both our sweet China miracles.  Please register for HOPE with Every Step and help us win this battle!!!

(click above to get registration info)

Lily is ready, are YOU????

Sunday, September 1, 2013

The Worst Day

I found this sticky note in my jewelry drawer brought me back to the worst day of my life.  The day I realized that I would one day live every parent's worst nightmare.  The realization that I would outlive one of my children.  This day happened in late March 2012, it's taken me this long to even be able to blog about it.  Not really sure why I'm led to share it now, but it's on my heart and finding this note, just let me know it's time.

Late March 2012...Lily was still in her hard pants (body cast) and initial genetic testing had already confirmed that she had some type of Muscular Dystrophy.  We were waiting on muscle biopsy results to know what type.  I had Googled her symptoms for weeks and thought I knew exactly what type of MD Lily had.  I was prepared, I could handle it.  No big deal...mainly because the type I picked wasn't that bad. 

Lily and I picked the bigs up from school and hurried home.  Mary Ashtyn and I were going with a group of her friends to see The Hunger Games.  It was going to be a great of the first times I had left Lily since her surgery and body cast.  We were really looking forward to it!

My phone rang not long after we got home...not a call I expected on a Friday afternoon.  It was Lily's neurologist with her muscle biopsy results.  I grabbed a little sticky note that was already written on...fully prepared to write the name of the Muscular Dystrophy that I was ready for.  As he began to go over the results, I realized my Google diagnosis was wrong...really, really wrong.

I heard Congenital Muscular Dystrophy, not good!!  I had skipped over that type in my research, it wasn't good and I did not want to think about my baby having that form of MD.  He said it!!  I wrote it on my sticky note!!  Then he says it may affect her brain...learning difficulties, seizures.  He goes on to say that it is a rare,progressive type that will ravage every muscle in her body.  As I wrote breathing and heart, I couldn't breathe and I couldn't see because I was sobbing.  Honestly, I had not cried about Lily's diagnosis until this phone call.  I think her doctor was shocked at my reaction because we had handled everything so well until now.  In my mind, I just didn't think it would be this bad.

I hung up the phone, closed my bedroom door, fell on the floor and screamed, "not my baby" until Trent came home from work and picked me up off the ground.   We read the sticky note together,cried some more and then started researching Merosin Deficient Congenital MD.  (I did make it to the movies with Mary Ashtyn...swollen eyes and all).

By the end of the weekend, we had told our families the diagnosis.  By the end of the week, we had found the president of the company who was working to find a treatment for Merosin Deficient CMD.  Within a few weeks, we were enrolled in the National Institute of Health study for CMD.  We were preparing for a battle that we were and still are determined to win.

The things I wrote on that sticky note should NEVER have to be written by any parent.  No parent should have to worry about the things that we face on a daily basis.  So, it's strange to say that as a family, we are thankful for Muscular Dystrophy...the bad kind!  Through Lily and her daily fight with Merosin Deficient Congenital Muscular Dystrophy, God has healed our family.  We are stronger and better than I could have ever imagined after that horrible day when our world changed forever.

The sticky note reminds me of the worst day...

This sweet face reminds me of the best days.  The days we get to be her family, loving her and enjoying every second that she is ours.

The sticky note also reminds me how big God really is.  After hearing the worst, it's amazing to continue to see Lily getting stronger and improving!  God is in control, no matter the diagnosis.