Friday, June 29, 2012


 We have to pray with our eyes on God, not on the difficulties.

On the last day of the NIH study (June 11), I spent about an hour and a half watching this sweet face during her MRI.  Although we don't have any results of the MRI yet, we know that it will more than likely show some brain abnormalities.  NOTHING serious just differences in her white matter that is common with Merosin Deficient Congenital Muscular Dystrophy.

During her MRI, they brought me a chair so that I could stay right beside Lily.  It was a great extended prayer time for me (in between giving her huge smiles and thumbs up).  Knowing that this test would show another difference in her sweet little body...most would expect me to sob throughout it, right?  Nope!  I spent my quiet time thanking God for each and every second that He lets me be Lily's Mama.  I prayed for wisdom as we learn more about her MD and seek out the best treatment for her.  There was no begging for healing, just a request that He use her to show us all how amazing He is.  The peace that I felt sitting there with Lily during her MRI can only come from God.

Don't worry about anything; instead, pray about everything; tell God your needs, and don't forget to thank Him for His answers. If you do this, you will experience God's peace, which is far more wonderful than the human mind can understand. His peace will keep your thoughts and your hearts quiet and at rest as you trust in Christ.  (Phil. 4:6-7)


  1. I admire your courage and strength as you face the unknown in sweet Lily's situation! I pray that God will lead you to the right treatment for her. What a wonderful blessing that you have each other!

  2. Hi...
    I have been quietly been following your family & Lily's progress for awhile now. Your courageous faith is a source of strength and tremendous wisdom. By the way you live and are raising you wonderful children, you are living the Phil.4:6-7.
    Thanking God and seeing the wonders, and unique ways of everything He has given us does give quiet calm.

    There is a favor... if I black out your names and picture, may I take the main text to share with another adoptive Mother? She is in a similar situation and sharing "Peace" might ease the 'roads traveled'.

    Praying for your comfort,
    Barbara Lyman :-)

  3. Hi, Barbara!! Please feel free to share our blog with the other mother...anything we can do to help. Thank you so much for your sweet words. God has blessed us more than we could have ever imagined!!