Mei Mei and Mickey-matching hard pants
It hasn't been easy and it sure hasn't been pretty, but we have survived our first week of Lily's hard pants!! The muscle spasms and pain were rough for several days, but seem to be much better now. Toileting is under control which is a major relief. At this point, Lily is tired of being confined. Since Friday, she has been very sad and has cried a lot. It just breaks our hearts that we can't even really comfort her because of the cast. So frustrating!!!
Saturday was a tough day. She just couldn't get comfortable and refused anything that we tried to do. At one point, I just picked her up and took her outside to ride in her wagon (with piles of blankets and pillows). She was not happy that I forced her outside, but I knew she needed a change of scenery. ALL she wanted to do was lay on her blanket and watch Mickey Mouse. We noticed that her arms and neck were extremely weak. When we picked her up, Lily's head would just roll forward. My biggest fear about the surgery and body cast is that she will lose what muscle strength she has. It terrifies me. Please pray with me that she will stay strong and not lose all the progress that she has made in the past 3 months.
Sunday was not much better. My Silly Lily was lethargic and just sad. I was crying, she was crying...it was a full blown pity party. I tried to get her on her tummy so that she could color or draw, but she just laid there with her head in the pillow and sobbed. Finally, I just pulled her to me and laid down on my back. She wrapped those sweet little arms around my neck and we both sobbed. I promised her over and over that her Daddy and I would always love her and take care of her.
Today, we woke up determined to have a good day. Trent and the big kids are home for Spring Break, so we made Mickey Mouse shaped waffles. Lily loved them and giggled while she ate Mickey's ears.
The best big brother in the world painted with her while she laid on her tummy!!! Finally :)
We have some friends who just got home from Disney World, so Anna Blair and Reagan came by to bring her surprises. She loved her Mickey necklace and bracelet!!! They also brought her a picture of Mickey Mouse, and she has looked at it all day long. I had to make her take off her new jewelry before bed. Don't you think it's time for BamFam5 to plan a DW trip?? Well, AFTER the hard pants are gone!
Wearing her new dress from NaNa, waiting for her friends to visit
Now that I'm not scared I'm going to hurt her, I can carry her on my hip. I took her outside to watch Trent and Reece play basketball. She giggled and cheered for them. We finished off our afternoon making Play Dough ice cream treats.
Praying that today is the beginning of getting our Silly Lily back. She is a smart little girl and this is really tough on her. I've said it a lot, but I know God has big plans for this little ladybug. This is all part of His plan, so we'll fight our way through the next 5 weeks. Can't wait to see how God uses this experience to remind us all that nothing is impossible for Him!